Families of Spinal Muscular Atrophy-Pennsylvania Chapter - Southeastern PA Region
Families of Spinal Muscular Atrophy - Community Support
The diagnosis of Spinal Muscular Atrophy can be confusing, scary, frustrating, pretty much the whole gamut of emotions - but you are not alone. You are now part of Families of SMA, a network of families, researchers, clinicians and other professionals who are determined to make a difference.

Families of SMA is here for you at whatever level you need. We hope to provide you with information that will help you navigate through life with SMA. We are here to help connect you with other families and to provide resources to assist in the care of a family member with SMA. And we are here working together to fund the research that will lead us to a treatment and a cure for SMA. As caring parents and professionals, we can offer support and understanding when it is most needed.
Phone/FAX Numbers
  • (215) 605-7856 Main
Email Address: pennsylvania@fsma.org
Intake Procedure: Visit www.curesma.org for more information on Cure SMA programs. To contact our office, please call us toll-free at (800) 886-1762, or e-mail us at info@curesma.org
Fee Amounts: Contact us for information.
  • Health/Disability Related Support Groups
If you represent this agency, update your listing here.
* The community resource directory information is up to date to the best of our knowledge. However, you should always call the provider to confirm this information and make an appointment. Be sure to confirm payment information with the provider, if payment is required. Pennsylvania 211 does not rate, recommend or endorse any agency. We simply provide information as a public service.

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