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Association for Frontotemporal Degeneration
Supports and Services
Offers information, support and advocacy to people affected by frontotemporal degeneration (FTD) and their caregivers.

Provides a helpline. Organizes Zoom and phone support groups for particular types of FTD and for the main challenges for caregivers (behavior, language, grief, and other young children)
. Offers Comstock Grants to full-time family FTD caregivers and persons living with FTD.
2700 Horizon Drive
Suite 120
King of Prussia, PA 19406
Eligibility: No limitations or restrictions
Hours: Monday through Friday, 8:30am to 5:00pm
Centre County Human Services - Office of Aging
Caregiver Support Program
Helps to lessen the burden on caregivers by providing information, assistance, caregiver training, respite care assistance, and supplemental services.
420 Holmes Street
Suite 245
Bellefonte, PA 16823
Eligibility: Call for information
Hours: Monday through Friday, 8:30am to 5:00pm
Epilepsy Association of Western and Central PA
Epilepsy Association of Western and Central PA
Offers support groups/webinars/summer camp, emergency medication assistance, movement monitors, seizure response dogs, training for teachers/school nurses/seizure recognition, and first aid training/high school scholarships/educational conferences/service dogs/sleep and movement monitors/assistance with care coordination and more. Patient education, Information and support for adults, young adults, and children with epilepsy and their families, and those working with individuals living with seizures.
1501 Reedsdale Street
Suite 3002
Pittsburgh, PA 15233
Eligibility: Open to anyone interested who has epilepsy or a seizure disorder or who cares for a person who is living with epilepsy or a seizure disorder.
Hours: Monday through Friday, 8:30am to 4:30pm
Phone answered 24-hours
STEP, Inc.
Family Caregiver Support
Designed to respond to the needs of. Its purpose is to reinforce (not replace the care being provided to the older person (who requires continuous care) at home. Depending on the annual household income, up to $250 a month for out-of-pocket expenses for purchased services and supplies (medications and medical supplies) directly related to the care of their relative or friend, is available. A lifetime amount of up to $2,000 may be available toward the purchase of assistive devices or home modifications. Reimbursement amounts are determined by actual expenses and household income.
124 East Walnut Street
Lock Haven, PA 17745
Eligibility: Income eligibility guidelines. Families and friends caring for their loved ones at home (do not have to be related or living in same home.
Hours: Monday through Friday, 8:30am to 5:00pm
STEP, Inc.
Family Caregiver Support
Designed to respond to the needs of families and friends caring for their loved ones at home. Its purpose is to reinforce (not replace the care being provided to the older person (who requires continuous care) at home. Depending on the annual household income, up to $250 a month for out-of-pocket expenses for purchased services and supplies (medications and medical supplies) directly related to the care of their relative or friend, is available. A lifetime amount of up to $2,000 may be available toward the purchase of assistive devices or home modifications. Reimbursement amounts are determined by actual expenses and household income.
2138 Lincoln Street
Williamsport, PA 17701
Eligibility: Income eligibility guidelines. Program does not require caregiver and care receiver to live in the same household, and they do not need to be related.
Hours: Monday through Friday, 8:30am to 5:00pm
Association for Frontotemporal Degeneration
Supports and Services
Centre County Human Services - Office of Aging
Caregiver Support Program
Epilepsy Association of Western and Central PA
Epilepsy Association of Western and Central PA
STEP, Inc.
Family Caregiver Support
STEP, Inc.
Family Caregiver Support
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