“Me First”Breast Cancer Awareness, Education and Support Program is an ongoing effort of the African Family Health Organization (AFAHO) aimed at addressing an unmet need for breast health information, education and access to screenings among underserved African and Caribbean immigrant and refugee women (ACIRW) in the greater Philadelphia area

AIDSinfo is a Department of Health and Human Services (DHHS) project that offers reliable information on HIV/AIDS clinical research and treatment. Maintains information on clinical trials for individuals with AIDS or infected with HIV. Also provides medical practice guidelines for people living with HIV/AIDS, their families and friends, health care providers, scientists, and researchers. Provides information about the current treatment regimens for HIV infection and AIDS-related illnesses.

Raises awareness about Epilepsy. Provide, at no charge (or low cost) epilepsy monitors and detection devices such as the Sami Alert Monitor. Provide assistance in travel costs (gas cards, hotel accommodations).

Office of Developmental Supports provides intake and registration for supports coordination to eligible individuals with intellectual disability and/or autism. Questions can be answered about available services and supports regarding assistance for families of children age 0-9 with developmental disability. Staff is available to provide presentations or host information tables for schools and community events, parent and professional groups. Printed information can also be provided. Fact Sheets, available online, are brief explanations of important subjects regarding the Office of Developmental Supports and the service system. Fact Sheets include: How to Register and Eligibility and Supports Coordination.

The health department's Chronic Disease Prevention Program works to improve the quality of life of Allegheny County residents by enabling them to prevent, detect, delay and/or manage heart disease, high blood pressure, diabetes and cancer. In addition, the program tracks trends in illnesses and death in Allegheny County residents from these major diseases using information from death certificates, hospital discharge data, and the Allegheny County behavioral risk factor surveillance survey. Promotes healthier and safer living through injury prevention and training in Traffic Safety. These efforts include pedestrian safety education and teen safe driving competitions.

Family health organization dedicated to eliminating suffering and death due to asthma, allergies and related conditions through education, advocacy and community outreach.

Offering primary medical care as well as specialty care for HIV, HCV, and STDs. Prevention services include a PrEP clinic, free HIV/HCV/STD testing, outreach and education. Client services for those living with HIV include medical case management, food pantry, supportive housing, legal services, and emergency financial assistance. We specialize in LGBT health and wellness.

The leading voluntary health organization for information and research on Alzheimer's Disease and dementia. Information and referral provided through website and 24 hour helpline. Also provides training in Alzheimer's care for healthcare providers.

Offer Education and Workplace "Lunch and Learn" programs for employee groups. Provide monthly support groups for diagnosed individuals who are in the early stages of Alzheimer's disease, who are aware of their diagnosis, and want to come meet and talk with others who are dealing with the same problems. Family caregivers are encouraged to attend.

Provides information and support to Behcet's patients, their families, and physicians. Offers nationwide support groups, patient/family conferences, doctor references, and patient to patient advice. Publications available, including: "Behcet's Disease, What You Should Know," "Behcet's Disease and Your Eyes," and "Behcet's Disease and Your Nervous System."

Provides information about brain tumors, options for treatment, research updates, and support services (including online support) to patients, their families, and medical professionals. Dedicated to eliminating brain tumors by advocating innovative research and treatment approaches. Tri-annual newsletter and copies of ABTA publications are available free of charge.

Public and professional education through programs, speakers, films, literature and seminars. The Patient Service Dept. may provide assistance with medication costs, transportation, home-care equipment, wigs, bed pads, surgical dressings, housing for out of town patients and families. Variety of gift items (wigs) and financial assistance (if eligible) may be offered.

Cancer Information and Support specialists are available anytime, day or night, to help you understand your diagnosis, your treatment options, and connect you to local support.

Provides information and support to those facing cancer 24 hours a day, 365 days a year. Trained cancer information specialists are available via phone, or live chat, providing accurate, up to date cancer information to patients, family members, and caregivers and connecting them with valuable services and resources in their communities. National Cancer Information Center can be reached at 1-800-ACS-2345.

The organization supports efforts in education, research and mutual support to individuals and family members with dietary disorders including Celiac Sprue Disease, Dermatitis Herpetiformis, Lactose intolerance, wheat intolerance and allergies, Crohn's disease, various food allergies and other dietary disorders. It helps set up support groups, sponsors conferences, seeks funding for research and education, seeks better food labeling and strives for patient, public and professional education in these life threatening problems. Phone counseling, patient packets, hospital visits, important patient care information is provided on request. Annual membership is voluntary.

Enhances the quality of life for individuals affected by cleft lip and palate and other craniofacial birth defects. -Provides comprehensive information to educate patients, families, and professionals makes referrals to cleft/craniofacial treatment teams -Offers telephone and online counseling and support service through the Cleftline 1-800-24-CLEFT (800-242-5338) -Funds research to learn all we can about prevention and care -Provides Cleftline Teddy Bears with repaired cleft lips -Advocates for family-centered team care -Awards a minimum of three $500 college scholarships each year to young adults affected by cleft and craniofacial birth defects

Mission to prevent and cure diabetes and to improve the lives of all people affected by diabetes. Funds research, provides information and other services to people with diabetes, their families, health professionals and the public.

Provides the Diabetes Expo, youth programs, summer camps, family resource networks, monthly magazines, speakers, health fairs, golf and cycling events, America's Walk for diabetes, fundraising events, and advocacy program initiatives.

Provides current information on heart disease prevention and the importance of nutrition and exercise. Advocates on issues such as; smoke-free public places, more bike and pedestrian friendly cities and towns, better nutrition and higher quality physical education in schools and affordable healthcare. Improves the quality of care for heart and stroke patients by providing training for medical professionals and educating the public about the warning signs of stroke, and providing resources for stroke survivors and caregivers. Supports heart and stroke research and disseminates medical advances and new treatment guidelines though journals, conferences and online courses.

Provides current information on heart disease prevention and the importance of nutrition and exercise. Advocates on issues such as; smoke-free public places, more bike and pedestrian friendly cities and towns, better nutrition and higher quality physical education in schools and affordable healthcare. Improves the quality of care for heart and stroke patients by providing training for medical professionals and educating the public about the warning signs of stroke, and providing resources for stroke survivors and caregivers. National organization supports heart and stroke research and disseminates medical advances and new treatment guidelines though journals, conferences and online courses.

Provides current information on heart disease prevention and the importance of nutrition and exercise. Advocates on issues such as; smoke-free public places, more bike and pedestrian friendly cities and towns, better nutrition and higher quality physical education in schools and affordable healthcare. Improves the quality of care for heart and stroke patients by providing training for medical professionals and educating the public about the warning signs of stroke, and providing resources for stroke survivors and caregivers. National organization supports heart and stroke research and disseminates medical advances and new treatment guidelines though journals, conferences and online courses.

Training millions of Americans in CPR, advanced life support, AED (defibrillator) use and first aid; promoting AED placement in businesses and public places. Improving emergency care for heart attack victims Helping hospitals treat cardiac and stroke patients according to proven guidelines. Strengthening stroke systems of care, teaching the public to respond to warning signs, and providing resources for stroke survivors and caregivers.

Conducts health education initiatives and legislative advocacy on behalf of people with or at risk for kidney disease. Provides information on kidney disease through an internet and telephone helpline, free kidney screenings to the public and treatment-related financial assistance to kidney patients.

Services include: - Radon Awareness: Information on health effects, testing procedures and reduction methods. Radon testing kits available for purchase. - Carbon Monoxide Awareness: Information on health effects, testing procedures and proper steps to take. - Air Pollution Awareness: Information on asbestos, environmental (secondhand) tobacco smoke, ground-level ozone and other indoor and outdoor air pollutants. - Advocacy for Lung Health: Supporting individual, community, workplace, municipal, state and federal initiatives to protect people and environment from air pollution, including support of tobacco control measures. - Freedom from Smoking Classes (referral): An 8-session (7 week) program of behavior modification for smoking cessation. Provides suggestions on how to build a healthier lifestyle, including relaxation techniques and avoiding weight gain. Fee is set through participating sites (free through above web site). Participants must finalize fee and program dates through sponsoring hospital. Call ALA for info. - Provides information on a residential camp for children, ages 8-13, who have asthma. - Also sponsors Better Breather Club Support Group for people living with COPD. - Asthma Walk fundraiser, Walk for Life and Breath fundraiser. - Call Center: Trained registered nurses and respiratory therapists provide immediate and comprehensive information about specific lung-health issues such as lung cancer, chronic bronchitis, emphysema, asthma and tuberculosis. Also will provide information on topics including allergies, how to quit smoking and environmental issues. Offers physician referrals.

Grass roots organization serving those affected by Parkinson's Disease. Provides information and resources to patients, their families, friends, doctors and other medical professionals; promotes public awareness of the disease; and sponsors research into the causes and treatment for the Disease. National Resource Center for Rehabilitation provides access to a licensed physical therapist who can answer questions and provide educational materials. Operates 62 Information and Referral Centers across the country to educate, counsel and refer patients to medical professionals.

Mission statement is "To Ease the Burden..To Find the Cure." Provides printed literature on Parkinson's disease--free of charge, referrals to movement disorder specialists in the area, and other areas in the country through referrals via coordinators.

Preventing sudden infant death syndrome (SIDS). Information is available online or through a 24 hour information line.

Information Line provides information about the Americans with Disabilities Act.

Funds medical research on aplastic anemia and bone marrow failure diseases, advocates for increased federal funding of research into these diseases, promotes public awareness of bone marrow failure diseases, and educates medical professionals about causes and treatments of bone marrow failure diseases. Provides personalized support from patient educators via e-mail (help@AAMDS.org) or the toll free line. Volunteer peer support network also provides emotional support and understanding.

Autism Training and Support Services available to people with autism and their families include: strategy development to support behaviors in the home,the community and the classroom; training, consultation, and support for toddlers and families in their homes;

www.arthritis.org

Offers information and tools to help people live a better life with arthritis. Services include information and referral, exercise, and self-help programs. Provides public health education, pursues public policy and legislation, and conducts evidence-based programs to improve the quality of life for those living with arthritis.

ASERT (Autism Services, Education, Resources and Training) is a partnership of medical centers, centers of autism research and services, universities, and other providers involved in the treatment and care of individuals of all ages with autism and their families. ASERT was developed to bring together resources locally, regionally, and statewide. ASERT Mission: Innovate, collaborate, and lead to improve access to quality services, data, and information; to provide support, training and education in best practices; and to facilitate the connection between individuals with autism, developmental disabilities, and special populations, families and key stakeholders at local, state, and national levels.

Organization for people with asthma and allergies that offers educational programs and resources for patients, caregivers, and health professionals; develops and advocates for public policies to improve the quality of life for people with asthma and allergies; and funds research on both asthma and allergies.

Provide education, advocacy and support to parents and professionals. Services are free and include: information packages, workshop presentations to intermediate units, schools, churches, universities and public agencies; a lending library; training programs to the region's school districts; and seminars and workshops on topics ranging from medications to behavioral and therapeutic treatments.

Autism Society Lehigh Valley is a non-profit affiliate whose mission is dedicated to improve the lives of all affected by autism. Provides fun activities in the community to allow the families and their loved ones affected by autism to meet each other and have fun at the same time. A parent run organization that creates an autism friendly community. Offers a Teen/Adult parent support group with activities for the youth as well as a support group for parents of children 6 and under (with childcare). Provides fun activities in the community such as bowling, miniature golf, dances and other activities to allow the families and their loved ones affected by autism to meet each other and have fun at the same time.

Assists Beaver County residents in the prevention of cancer and/or cardiovascular diseases, by sponsoring or providing support services and education programs.

Information on Asthma, COPD, Lung Disease and other respiratory diseases.

Students, Parents & Group Education Presentations, STD Educational Information, Drug & Alcohol Resources & Referrals, Self Injury Resources & Referrals, Domestic Violence Support, Resources & Referrals, Sexual Assault Support, Resources & Referrals, Health Crisis Resources & Referrals, Mental Health Resources & Referrals.

Provides information, education and support to assist those currently living with brain injury and their families. Advocates for polices of concern to people with brain injury. Maintains a listing of brain-injury related supports and services. Offers educational materials to both families and professionals.

Inpatient and outpatiend cancer care services. Offers screening, diagnosis, treatment, rehabilitation, survivorship.

Brandywine Hospital has been taking care of families for more than 100 years. With excellent physicians and advanced medical technology, the staff provides exceptional care for patients in its 243-bed licensed facility.

Breast cancer symptoms vary widely, from lumps to swelling to skin changes, and many breast cancers have no obvious symptoms at all. Symptoms that are similar to those of breast cancer may be the result of non-cancerous conditions like infection or a cyst. Breast self-exam should be part of your monthly health care routine, and you should visit your doctor if you experience breast changes. If you're over 40 or at a high risk for the disease, you should also have an annual mammogram and physical exam by a doctor. The earlier breast cancer is found and diagnosed, the better your chances of beating it. The actual process of diagnosis can take weeks and involve many different kinds of tests. Waiting for results can feel like a lifetime. The uncertainty stinks. But once you understand your own unique "big picture", you can make better decisions. You and your doctors can formulate a treatment plan tailored just for you.

Offers programs to people with asthma, chronic lung disease, or who may be looking to quit smoking. Provides services for the prevention and control of lung diseases including asthma, tuberculosis, influenza and pneumonia.Offers self-help and clinic smoking cessation programs including Smoke-Free for Life; Breathing Partners educational group; and other respiratory health information. Will provide air conditioners for individuals with respiratory illness who are suffering from the effects of extreme temperatures (there is a waiting list).

The Collaborative engages in partnerships with agencies working on specific community issues; for example: -WISE SNAC Childhood obesity prevention project - the Health Promotion Council and Montgomery County Health Alliance -Mobile Dental Clinic - Montgomery County Community College, Montgomery County Health Dept., North Penn Community Health Foundation, and North Penn Visiting Nurse Association -Health Promotion Council hpcpa.org -Montgomery County Community College mc3.edu -Montgomery County Health Dept. health.montcopa.org -North Penn Community Health Foundation npchf.org -North Penn Visiting Nurse Association

Offers a variety of supportive programs for people with cancer and their families, all free of charge. Services include support groups for people with cancer and their caregivers, stress management classes, educational programs, exercise and nutrition workshops and social activities. All are welcome.

Books and materials are available for patients and their loved ones to borrow to better understand their disease and treatment options.

Resources for cancer prevention and recurrence prevention. Counseling for cancer patients seeking non-toxic approaches as adjuncts or alternatives to conventional cancer treatments. Nutritional, immune and psycho-emotional support for patients with cancer and other degenerative conditions. The Center collects, evaluates and distributes information on biological cancer therapies and provides educational programs for both lay and professional groups. Publication, speakers bureau, cancer resource library, conferences and classes, books and tapes.

Dedicated to conquering chronic fatigue syndrome (CFS), which is also known as chronic fatigue and immune dysfunction syndrome (CFIDS). Provides information and resources on CFS/CFIDS to patients, family members, caregivers, the general public and health care professionals. Supports research and public policy to advance the understanding, diagnosis, treatment and prevention of CFS.

Family Health Care offers medical services for adults and pediatric services for children on a variety of health related issues. Services available in Delaware County include: - Comprehensive Family Health Care (serving adults and pediatrics) - Comprehensive Family Dental Care - Social Services - In-House Laboratory - Homeless Health Care - HIV/AIDS Care - Family Planning Services - In-House Pharmacy - Culturally and Linguistically Appropriate Health Care Services available in Chester County include: - Comprehensive Family Health Care (serving adults and pediatrics) - Prenatal Services - In-House Laboratory - HIV/AIDS Care - Social Services - Culturally and Linguistically Appropriate Health Care

Provides comprehensive primary and preventive care and social services to medically underserved families and individuals on a sliding scale.

Family Health Care offers medical services for adults and pediatric services for children on a variety of health related issues. Services available in Delaware County include: - Comprehensive Family Health Care (serving adults and pediatrics) - Comprehensive Family Dental Care - Social Services - In-House Laboratory - Homeless Health Care - HIV/AIDS Care - Family Planning Services - In-House Pharmacy - Culturally and Linguistically Appropriate Health Care Services available in Chester County include: - Comprehensive Family Health Care (serving adults and pediatrics) - Prenatal Services - In-House Laboratory - HIV/AIDS Care - Social Services - Culturally and Linguistically Appropriate Health Care

Monitoring and investigation of communicable diseases, response to disease outbreaks. Free, confidential testing, counseling and exams for sexually transmitted diseases and HIV/AIDS on a walk-in basis. Tuberculosis screening and treatment.

Women's Health Services meet the complete spectrum of women's health and include traditional medical and surgical approaches. The latest advances in gynecologic care is offered, covering everything from routine attention to minimally invasive and robotic surgeries to gynecologic-oncology. The obstetric program encompasses Maternal Fetal Medicine as well as Reproductive Endocrinology. The program includes a Level III Neonatal Intensive Care Unit (NICU) available for newborns that need specialized care and a robust inpatient pediatric program to care for children up to age 18. Services available include: - Wellness - Disease Prevention - Complementary Holistic Alternatives - Gynecological - Obstetrics - Physical Health

Women's Health Services meet the complete spectrum of women's health and include traditional medical and surgical approaches. The latest advances in gynecologic care is offered, covering everything from routine attention to minimally invasive and robotic surgeries to gynecologic-oncology. The obstetric program encompasses Maternal Fetal Medicine as well as Reproductive Endocrinology. The program includes a Level III Neonatal Intensive Care Unit (NICU) available for newborns that need specialized care and a robust inpatient pediatric program to care for children up to age 18. Services available include: - Wellness - Disease Prevention - Complementary Holistic Alternatives - Gynecological - Obstetrics - Physical Health

Women's Health Services meet the complete spectrum of women's health and include traditional medical and surgical approaches. The latest advances in gynecologic care is offered, covering everything from routine attention to minimally invasive and robotic surgeries to gynecologic-oncology. The obstetric program encompasses Maternal Fetal Medicine as well as Reproductive Endocrinology. The program includes a Level III Neonatal Intensive Care Unit (NICU) available for newborns that need specialized care and a robust inpatient pediatric program to care for children up to age 18. Services available include: - Wellness - Disease Prevention - Complementary Holistic Alternatives - Gynecological - Obstetrics - Physical Health

Addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions through information provision and referral to resources.

We offer free medical care to guests. We provide physical examinations and education on topics such as disease management, lifestyle changes, self-care, diet, medication management, mobility issues, and safety issues. We also provide dental care in partnership with local dentists.

Presentations of Dementia Friends and Alzheimer's Association: Understanding Alzheimer's and Dementia, 10 Warning Signs of Alzheimer's, Behaviors, Communication, What Do We Know About Preventing Alzheimer's Disease.

The Community Liver Alliance builds bridges connecting patients to health care providers and services; creates and conducts screenings, educational workshops and seminars; coordinates support groups; works with local media and community groups to increase awareness of liver wellness and liver disease; and meets with local, state, and federal policy makers to initiate positive change.

Inter-related educational programs designed to enlarge an individual's ability to make informed choices, experience good health, and integrate thinking with feeling. Bringing families together to experience the joy of working together while working toward a shared vision.

A non-profit, volunteer-driven organization dedicated to finding the cure for Crohn's disease and ulcerative colitis.

Helps to cover the costs of travel and high cost of medical treatments that insurance does not cover. Provides aid to those who qualify on a quarterly basis through our Direct Dollar Disbursement and provide speakers and support to those in need.

The leading organization in the United States devoted to cystic fibrosis. National Affiliation: Cystic Fibrosis Foundation 6931 Arlington Road Bethesda, MD 20814 301-951-4422 301-951-6378 Fax

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment and ensuring access to high-quality, specialized care.

Dedicated to promoting research to find new treatments and a cure for Epidermolysis Bullosa (EB) and providing information and support for people with EB and their families.

The designated expert on traumatic brain injury (TBI) for the Department of Defense and the Veteran's Administration. Provides advanced TBI care at 19 facilities across the USA and Germany and coordinates care amongst multiple health systems to ensure that all active duty military and veteran patients with TBI receive appropriate screening, evaluation, treatment and follow up care. Any service member or veteran with a traumatic brain injury who is covered by TRICARE or Veterans Affairs benefits may be referred to DVBIC. Self referrals are also accepted. Conducts clinical research on optimal care and treatment of individuals with TBI and ensures that current research findings are translated into clinical practice. Develops educational materials and programming for the prevention, assessment and treatment of TBI.

- General information about DES health consequences and recommended screenings for mothers who were prescribed the anti-miscarriage drug, DES, their children and now possibly their grandchildren - Physician Referral list for DES Daughters (please note, we have some referrals for DES Sons but they are scarce and mostly in urban areas) - Directions for doctors on how to do a proper DES Daughter Pap/pelvic exam - Comprehensive brochure about DES

Community outreach and trainings provided for families and professionals interested in learning more about people born with Down Syndrome. Sponsors the annual Buddy Walk for the awareness, acceptance and inclusion of people who have Down Syndrome.

Dedicated to serving people with all forms of dystonia, their friends and families, healthcare professionals and researchers. Provides information about dystonia, advocates on behalf of those affected by it and funds research into the causes and treatments for dystonia.

Free brochures in 30+ languages; free information kit. Books, DVDs, nutritional supplements available for purchase. Members have access to Crisis Caller list and Healthcare Provider list.

Voluntary health organization that provides education, support and advocacy for people with epilepsy and their families. Programs and services include: - Informational materials - Medical, legal and mental health referrals - Adult resource services - Workshops and conferences - Children and family services - Support groups - Community education - Lending book and video library - Personal and legislative advocacy - Teen and pre-teen camp - Special events - Annual spring education conference - Young Adult Retreat

A voluntary health organization that provides education, support and advocacy for people with epilepsy and their families living in Eastern Pennsylvania. Please be advised (due to the ongoing pandemic) ALL support group meetings will be held virtually through Zoom until further notice. Please visit the website for additional details.

Serves the public with important health information, advance the standards of medical care, and uphold the ethics of the medical profession.

It is a patient assistance program that provides more than 50 prescription medicines (generic) to help treat ongoing health problems like diabetes,high blood pressure & depression at reduced cost to people who have incomes below 250% of the federal poverty level.

For a $50 annual donation, FFB offers information and referral services for affected individuals and their families as well as for doctors and eye care professionals. Also provides comprehensive information kits on retinitis pigmentosa, macular degeneration, and usher syndrome. Provide a newsletter, InFocus, and a e-newsletter, InFocus online, which presents articles on coping, research updates, and Foundation news. Both newsletters are published 3 times per year. Offers a national conference, Visions, usually held every year.

Offers peer support counseling from another trans* individual. Services include: - Sexual health and HIV risk reduction counseling - Résumé and employment coaching - Assistance with legal name and gender marker changes - Access to safe hormones and trans* affirming medical care - Trans* sensitive housing/shelter referrals

Provides educational training for health care providers, distribute literature, helps sponsor vaccine and screening programs, coordinate a Speakers Bureau, assists with media campaigns and much more in support of Hepatitis B awareness. Provides online support groups and resources for the newly diagnosed.

Hepatitis C virus (HCV) education, support and advocacy. Provides information on support groups in the USA, produces and disseminates educational materials on HCV and offers training workshops for care providers and others impacted by HCV.

Teaches the public and hepatitis patients how to prevent, diagnose, and treat viral hepatitis, serves as advocates for hepatitis patients and the related medical community worldwide and supports research into prevention, treatment, and cures for viral hepatitis.

Information and referral; meetings for advocacy, education, and emotional support; and educational films and workshops for professionals. Support to patients and their families through education and professional and personal contacts. Literature, newsletter, films, speakers and training available. Support group meets at 3400 Dawson Street Pittsburgh. There are also Erie & Greensburg Support Groups available.

The Delaware Valley Chapter of Huntington's Disease Society of America provides the following support to the communities served. - On staff Social Worker - Individual and family counseling - Monthly support group meetings - Referrals to health care professionals skilled in the management of HD - Referrals to genetic counseling - Annual educational conferences - In-service training - Information including print and electronic - An overnight retreat/camp for individuals in early to mid stage HD

Provides initial counseling and help in creating a plan of care; does in-service in care facilities; provides resource information to individuals with Huntington's Disease.

Supports patients and families affected by brain injuries including strokes.

Helping individuals with dyslexia, their families and the communities that support them. Provides information and referral services, professional development, advocacy and research on learning disabilities.

Diabetic counseling and education on diabetic care with Registered Nurse Diabetic Educator. The clinic is a non-profit, community based volunteer organization established to provide primary healthcare, dental care, medication and education to individuals who have no insurance, have limited insurance or do not qualify for other services.

Comprehensive case management services, education, outreach, counseling and support groups.

Organization funding Type 1 diabetes (T1D) research. Goal is to progressively remove the impact of T1D from people's lives until we achieve a world without this disease.

The leader in research leading to a cure for type 1 diabetes in the world.

Mission Statement – “Accelerating life-changing breakthroughs to cure, prevent and treat type 1 diabetes (T1D) and its complications.”

The Senior Center offers those 55 years of age and older information and assistance, insurance counseling, free tax preparation, property tax and rent rebate assistance, educational programs, fitness and wellness programs, and recreational programs.

Provides information, training and technical assistance to parents and professionals caring for children who are deaf or hard of hearing.

Program provides individualized instruction and classes in diabetes self-management and follow up care. Includes an Insulin pump program and a wide range of medical services. Camp Red Jacket is a week-long summer camp for children with diabetes.

World's largest voluntary health organization dedicated to funding blood cancer research, education and patient services.

World's largest voluntary health organization dedicated to funding blood cancer research, education and patient services.

Serves children and adults diagnosed with leukemia, lymphoma, Hodgkin's Disease, and myleoma and works with families as well. Provides patient financial aid, advocacy, information and referral, educational materials, and patient and family support groups, including First Connection, which will match a newly diagnosed patient with a survivor. Sponsors a variety of fundraising opportunities including marathons, triathalons, and walks.

Serves children and adults diagnosed with leukemia, lymphoma, Hodgkin's Disease, and myleoma and works with families as well. Provides patient financial aid, advocacy, information and referral, educational materials, and patient and family support groups, including First Connection, which will match a newly diagnosed patient with a survivor. Sponsors a variety of fundraising opportunities including marathons, triathalons, and walks.

Provides financial assistance to patients receiving treatment for blood cancers. A co-pay program that covers some costs associated with drugs and treatment. Provides assistance for the patient who experiences hardships with health insurance premiums and drug co-pays for certain blood cancer diagnoses. May provide stipends for transportation to medical appointments.

Provides a combined exercise and nutrition management service. This includes assistance learning about daily nutritional needs, and the necessary lifestyle adjustments that may be required to make in order to manage chronic diseases such as diabetes and cardiac conditions.

Alzheimer’s Caregivers Support Group is a social group for families as they attempt to handle the challenges presented them after a diagnosis. Provides opportunities for social events as well as education and information-sharing. Members are referred by the Visiting Nurses Association, local rehabilitation centers, local hospitals, and from other participants.

Ask-the-expert series will help answer your questions about breast cancer, whether you are newly diagnosed, in treatment or years beyond treatment. Each month, we ask a breast cancer expert to respond to your questions on a specific topic during an ask-the-expert residency. Answers to select questions will be posted on our website on an ongoing basis throughout the month.

Free webinars discuss research findings presented at leading breast cancer conferences, share information on new treatments and clinical trials, and explore emotional and quality-of-life issues. These sessions feature breast cancer experts from across the country and provide time for you to ask your questions.

Provides care for seniors and persons with physical or mental disabilities or limitations, that wish to stay in their home and remain independent for as long as possible. Offers Disease Management, Home Support Services, Short Term Rehab, Hospice Support, Waiver Services.

Non-profit voluntary health organization dedicated to finding the cause and cure for lupus. - Provide direct financial support to research or emergency funding for qualified emergency needs related to lupus - Advocate to increase public and private support for research on lupus - Translate research finding into medically-sound information and programs - Heighten public awareness of the causes and consequences of lupus - Support individuals with lupus, their families and caregivers

To enhance public and health professional awareness and understanding of lupus.

LDASEPA Regular meetings are at the Kennett Friends Meeting, Route 82 in Kennett Square, PA - 7:00 to 9:00 PM, the third Wednesday of the month. Each meeting normally begins with a speaker presentation at 7:00 PM followed by Q&A and open discussion. Address: 250 N. Union St. Kennett Square, PA 19348

Provides patients and their loved ones with resources, answers, and information over a wide spectrum of free assistance options. To guide mesothelioma patients towards care options and health solutions. Includes live chat, matching individuals with doctors, medical content, etc.

This support group is free and open to all persons recovering from strokes and their families.

- Diagnosis and follow-up care at local hospitals including Lee Hospital, Johnstown; Children's Hospital of Pittsburgh; and UPMC, Pittsburgh. - Genetic counseling for families of those with a neuromuscular disease. - Summer camp for ages 6 -21 (held at Camp Lutherlyn in Butler) - Flu shots - May assist with purchase and reasonable repair of wheelchairs and leg braces (Physician approval required.) - Research allocations - Information and referral

A national voluntary health agency working to defeat muscular dystrophy and related diseases through programs of worldwide research, comprehensive services, and far-reaching professional and public health education. Accepts donations of usable medical equipment, refurbishes items and distributes them to those in need. Also provides assistance with medical equipment repairs. Clinic: Good Shepherd Rehabilitation Hospital 501 Saint John Street Allentown, PA 18103 Helps individuals cope with the physical and psychological aspects of the disease National Headquarters: Muscular Dystrophy Association 161 North Clark Street Suite 3550 Chicago IL 60601 800-572-1717

Offers free hotline counseling, a national network of support groups, referrals to healthcare professionals, education and prevention programs.

Seeks to alleviate the problems of eating disorders, especially anorexia nervosa and bulimia nervosa through education, research and the provision of information and referral services.

Works to empower its members and all people with Down syndrome by creating a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.

National advocate for the value, acceptance and inclusion of people with Down Syndrome. They envision a world in which all people with Down Syndrome have the opportunity to enhance their quality of like, realized their life aspirations and become valued members of welcoming communities. Provides information and referral via a toll-free Helpline and email service. Also produce print materials on Down syndrome including A Promising Future Together: A guide for new and expectant parents, Aging and Down Syndrome: A health and well-being guidebook, NDSS Brochure and Get to Know Me Poster and Lesson Plan. With the exception of the poster and lesson plan, all publications are available in both English and Spanish.

Online resource, information, and community for those who suffer, or think they may suffer, from Celiac Disease, and other gluten intolerances. Website includes a wealth of information about Celiac Disease, tips and recipes for parents and individuals needing to keep a gluten-free lifestyle, free webinars and blogs, and ongoing events, contests, and giveaways for the Celiac community.

To support and promote research towards the cause, treatments and a cure for Gaucher disease and to meet the ever-increasing needs of individuals with Gaucher disease and their families that may include financial assistance, education and awareness and supporting legislative issues and providing outreach programs vital to the Gaucher community.

Providing educational and informational resources, supporting headache research and advocating for the understanding of headache as a legitimate neurobiological disease.

Provides free information on hearing, balance, smell, taste, voice, speech and language disorders. Free Publications Information for general public and professionals.

Phone information by trained nurses about respiratory and immune system disorders. Referrals are given for respiratory specialists. Free literature is distributed.

A major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. Continuing Education of Health Care Professionals Expanding Patient Services and Community Resources Educating the Public Fund Raising Shaping Health Policy Supporting Research and Research Training

MS Navigator® provides answers to individuals questions and access to information about all of the options available to them. MS Navigators connect individuals to the information, resources and support needed to move their life forward. These supportive partners help navigate the challenges of MS unique to their situation, providing: - Information and education to help people with MS and their support teams powerfully advocate for what they need, when and how they need it - Emotional support resources for people with MS as well as family and carepartners, including support groups and ways to connect with others living with MS - Help through the complexities of finding a healthcare provider, benefits, insurance and access to coverage, and employment - Resources to face financial challenges and plan for the future - Wellness strategies that can make an impact on quality of life with MS including diet, exercise, emotional well-being and connection to local wellness resources - Assessment for personalized case management through the Edward M. Dowd Personal Advocate Program - Crisis intervention in times of need.

Provides information and support for individuals and their families who are born with albinism. Also promotes awareness, research, and education. One annual partial scholarship available.

Information about rare disorders, medication assistance with certain drugs affecting rare diseases.

Provides information concerning diagnosis/prevention/treatment of osteoporosis. Local community groups offer support and events.

Provides information, support, and referrals for patients diagnosed with ovarian cancer and their families.

Supports Parkinson's-related research, patient care, education, training and outreach.

Serving the needs of individuals and families affected by spasmodic dysphonia through supportive services. .

The leading national resource on stroke and the driving force behind efforts to improve stroke prevention, treatment and rehabilitation.

Dedicated to providing information, support and referral services to individuals and families affected by Tay-Sachs, Canavan, GM-1, and Sandhoff diseases; as well as to the treatment, cure and prevention of these diseases.